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Purple for Palmer Epilepsy Walk raises awareness and research dollars
More than 200 people walked this 2 mile Epilepsy Walk at Harding Park in Hubbard. They wore purple for 2 year old Palmer Beasley who is one of 12 people in the world diagnosed a rare form called Focal Epilepsy.
Sunday, August 27th 2023, 5:45 PM EDT
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More than 200 people walked this 2 mile Epilepsy Walk at Harding Park in Hubbard.
They wore purple for 2 year old Palmer Beasley who is one of 12 people in the world diagnosed a rare form called Focal Epilepsy.
Her mom who is an RN manager at Saint Elizabeth's in Boardman wants other parents to know if their toddler or child develops epilepsy there is hope.
"This is the first Epilepsy walk in the Mahoning Valley. The closest one is in Cincinnati, so we felt we needed to bring awareness to the disease and celebrate Palmer being 527 days seizure free," Meghan Beasley said.
A close friend, and co-worker at this event who is also a nurse who was babysitting noticed something wasn't right.
She encourages parents to document with video so that video can help doctors identify what's taking place.
"I was babysitting her one day, and she started doing a head drop, and me being a nurse I knew it wasn't normal, so I had my son videotape her, and caught it on camera, and she was able to send it in to a neurologist at Akron Children's," Korie Swanson said.
With donations and registrations alone for, the Purple for Palmer Walk has raised over $10,000.
Half will be donated to Akron Children's Neurology Department.
"Akron Children's Neurology Department has been wonderful. The first thing we had to do was stop the seizures so the medication helped. It's a combination of medications that work for each person, each child. Then they were able to d some DNA testing to find the cause of why we're having the seizures," Beasley added.
"Palmer has a very rare gene mutation that we've only found 12 other people in the world that have been reported to have it, so there's no treatment options we're aware of, but her medications are growing. We also use help me grow and early intervention with Trumbull County to help us with development and she's doing well," Beasley emphasized.
Half of the money will be given to The Epilepsy Foundation which has also helped Palmer. The foundation provided this information about the different types of seizures and what to do if someone has a seizure.
There are plans for this Epilepsy walk and fun day of music, and dancing will be a yearly event.